Consumer health data – clinical and socio-demographic – is increasingly collected, linked and used, both with and without consumers’ knowledge and informed consent. There is increasing focus on ‘big data’, evidence-informed policy, and the value of data-driven service development and improvement...

This is a brief initial submission in response to the discussion paper released by the Agency in November 2016. We look forward to working with the Agency to involve consumers more and to progress and resolve the issues raised in this submission and by other consumers through the consultation...

CHF welcomes the review into the Personally Controlled Electronic Health Records (PCEHR) System. CHF has undertaken extensive work on eHealth, particularly in relation to the PCEHR. Our submission draws on consultations with our membership, which includes organisations advocating for disease specific groups and networks, state and territory peak consumer organisations and individual consumers. CHF’s submission also draws on consultations undertaken through our Facilitating Consumer Input on the PCEHR Project, as well as previous submissions to consultations relating to the PCEHR. CHF also conducted an eHealth consultation in Feb 2012 as part of the Community Quality Use of Medicines and Medical Tests (CQUM/T) Project.